Advance Care Planning for Individuals With Intellectual and Developmental Disabilities IDD: Where Do We Go From Here
Live Event

Advance Care Planning for Individuals With Intellectual and Developmental Disabilities IDD: Where Do We Go From Here

Fri, Oct 13th, 2023
11:00am – 2:15pm US Eastern Time
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About the Event

Individuals with intellectual and developmental disabilities (IDD) are often forgotten when it comes to conversation, planning, and services in adulthood. COVID-19 provided a wakeup call for professionals, family caregivers, and broader caregiving networks to support individuals with IDD in planning for life for when their health changes and for their final days. This 3-hour training will provide a framework for understanding the multi-faceted nature of advance care planning, barriers to advance care planning, and reasons for advance care planning to support individuals with IDD. The number of older adults with IDD continues to increase; therefore, it is essential to carve out time to support individuals with IDD and their caregivers to plan for the future. This training will devote time to ethical practice and will discuss how to intentionally integrate ethical practice advocacy for advance care planning. This session will provide practical information to integrate advance care planning in work that is already being done to best meet the needs of adults with IDD throughout the life course.

Live Event
This live online event will be held as a Zoom Webinar. Attendees will have the option to interact through features such as the Chat and Q&A, but cameras and microphones will not be enabled.

Live Event Instructor

Christina Marsack-Topolewski

Christina Marsack-Topolewski

Dr. Christina Marsack-Topolewski is an associate professor of Social Work in the College of Health and Human Services at Eastern Michigan University. Dr. Marsack-Topolewski received her PhD in Social Work with a dual title in Gerontology from Wayne State University. She has worked with individuals with various intellectual and developmental disabilities (IDD) for 20 years. Her research focuses on individuals with autism and other neurodevelopmental disabilities, their caregivers, advance care planning, the service delivery model, and service utilization. She has over 90 publications in national and international journals and encyclopedias, mainly focusing on individuals with IDDs, caregiving, as well as services and supports. In addition, she has presented her work locally, nationally, and internationally.

Target Audience

This live interactive webinar is intended for behavioral health professionals, including Psychologists, Social Workers, Counselors, MFT's and Addiction Professionals.

Learning Objectives

After taking this activity, you should be able to:

  1. 1 Articulate what advance care planning entails and the dimensions of advance care planning.
  2. 2 Describe the barriers to and reasons for advance care planning in individuals with IDD.
  3. 3 Explain strategies to integrate advance care planning into the person-centered planning process.
  4. 4 Discuss how to advocate for ethical practices and approaches to advance care planning for individuals with IDD.

Acharya, K., Schindler, A., & Heller, T. (2016) Aging: Demographics, trajectories and health system issues. In I. L. Rubin, J. Merrick, D. E. Greydanus, & D. R. Patel (Eds.), Health care for people with intellectual and developmental disabilities across the lifespan (pp. 1423–1432). Springer International Publishing.

ACP Decisions. 19 Evidence-based benefits of advance care planning. Retrieved from https://www.acpdecisions.org/19-evidence-based-benefits-of-advance-care-planning/

Carr, D., & Luth, E. A. (2017). Advance care planning: Contemporary issues and future directions. Innovation in Aging, 1(1), 1–10. https://doi.org/10.1093/geroni/igx012

Cheung, J. T., Au, D., Ip, A. H., Chan, J., Ng, K., Cheung, L., ... & Woo, J. (2020). Barriers to advance care planning: a qualitative study of seriously ill Chinese patients and their families. BMC palliative care, 19(1), 1-9.

Church, H. L., Marsack-Topolewski, C., McGinley, J. M., & Knoke, V. (2021). Advance Care Planning Within Individualized Care Plans: A Component of Emergency Preparedness. Developmental Disabilities Network Journal, 2(1), 3.

Heller, T., Scott, H., & Janicki, M. P. (2017). Caregiving and intellectual and developmental disabilities and dementia: Report of the pre-summit workgroup on caregiving and intellectual and developmental disabilities. https://aadmd.org/ sites/default/files/Presummit%20on%20IDD% 20Brief-FINAL80 120 17a.pdf

Lee, C. E., Burke, M. M., & Stelter, C. R. (2019). Exploring the perspectives of parents and siblings toward future planning for individuals with intellectual and developmental disabilities. Intellectual and developmental disabilities, 57(3), 198-211.

Lougheed, D. C. (2019). Approach to providing care for adults with intellectual and developmental disabilities. Canadian Family Physician, 65(Supp 1), S14-18.

Marsack-Topolewski, C. N., & Graves, J. M. (2020). “I worry about his future!” Challenges to future planning for adult children with ASD. Journal of Family Social Work, 23(1), 71-85.

McGinley, J., Marsack-Topolewski, C. N., Church, H. L., & Knoke, V. (2021). Advance care planning for individuals with intellectual and Developmental Disabilities: A State-by-State content analysis of person-centered service plans. Intellectual and Developmental Disabilities, 59(4), 352-364.

Moran, J. (2017). General aging in intellectual and developmental disabilities: Aging with an intellectual and developmental disability. Center for Developmental Disabilities Evaluation and Research. Presented January 2017.

Moran, J. (2017). General aging in intellectual and developmental disabilities: Aging with an intellectual and developmental disability. Center for Developmental Disabilities Evaluation and Research. Presented January 2017.

The Arc Center for Future Planning. (2016). Where to start. https://futureplanning.thearc.org/pages/ learn/where-to-start/expressing-wishes-for-the future

United States Department of Health and Human Services. (2007). Literature review on advance directives (#HHS-100-03-0023). U.S. Government Printing Office.

Disclosure to Learners

CE Learning Systems adheres to the ACCME's Standards for Integrity and Independence in Accredited Continuing Medical Education. Any individuals in a position to control the content of a CE activity – including faculty, planners, reviewers, or others ― are required to disclose all relevant financial relationships with ineligible entities (formerly known as commercial interests).

The following relevant financial relationships have been disclosed by this activity's planners, faculty, and the reviewer:

Planners and Reviewers

The planners of this activity have reported that they have no relevant financial relationships.

Faculty

There are no known relevant financial relationships to disclose.

Commercial support

There is no commercial support for this distance-learning course.

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Joint Accreditation (JA)

3 Psychologist CE credit hours
3 Social Worker CE credit hours
Eligible until Oct 13th, 2023
In support of improving patient care, CE Learning Systems, LLC, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
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American Psychological Association (APA)

3 CE credit hours
Eligible until Oct 13th, 2023
Continuing Education (CE) credits for psychologists are provided through the co-sponsorship of the American Psychological Association (APA) Office of Continuing Education in Psychology (CEP). The APA CEP Office maintains responsibility for the content of the programs.
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Association of Social Work Boards (ASWB ACE)

3 CE credit hours
Eligible until Oct 13th, 2023
As a Jointly Accredited Organization, CE Learning Systems LLC is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 3 continuing education credit(s).
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3 contact hours
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CE Learning Systems (d/b/a impactce.com) is recognized by the New York State Education Department's State Board for Mental Health Practioners as an approved provider of continuing education for licensed creative arts therapists. #CAT-0008
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New York Education Department Board of Mental Health Counseling

3 CE credit hours
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CE Learning Systems, LLC (d/b/a impactce.com) is recognized by the New York State Education Department's State Board for Mental Health Practitioners as an approved provider of continuing education for licensed mental health counselors. #MHC-0072.
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New York Education Department Board of Psychologists

3 CE credit hours
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Event Agenda

Agenda times are listed in US Eastern Time. That is 3 hours later than US Pacific Time. The event starts at 8:00am US Pacific Time.

11:00 am – 11:30 am: Welcome, Introduction, Orientation to the Topic

11:30 am – 12:00 pm: Dimensions and facets of advance care planning

12:00 pm – 12:30 pm: Barriers to advance care planning: How to use this information to support individuals with IDD and their care support networks

12:30 pm – 12:45 pm: Break

12:45 pm – 1:15 pm: Reasons for and the value of advance care planning

1:15 pm – 1:30 pm: Developing strategies to plan within the context of person-centered planning

1:30 pm – 2:15 pm: Tools for advocating for ethical practices and approaches; Recap; Q & A

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